October 29, 2018 Dear Family and Friends, It has been 12 years since we started our journey with Sturge-Weber Syndrome (SWS). Since then, with your help, we have raised over $228,000.00, which includes monies raised from our annual golf tournament. It is an incredible amount of money, yet in the scheme of things sometimes seems …
Category: Articles
Apr 18 2012
Letter from Gigi and Pops 2012
April 2, 2012 Dear Family and Friends: Lola just turned six and recently had her 7th laser surgery. She is in kindergarten, learning how to read and loves it. Her seizure activity has increased the past few months with each one being different. They are scary as some are subtle, her eyes fixated and her …
Apr 02 2012
Dear Sturge Weber Syndrome
For Lola and others like her… Dear Sturge-Weber Syndrome: When you came into our life We prayed that you would go Sometimes what we want Isn’t what we get, this I know We don’t like that you are here You make everyone cry You bring sadness and fear We wish we could bid you good …
Mar 17 2011
Happy Birthday Lola
Happy Birthday Lola The day you were born was such a delight I ran through Atlanta airport not about to miss my flight I arrived at the hospital you were just an hour old The bruise on your face was yet to be told Your mommy and daddy were as happy as could be As …
Mar 17 2010
Letter from Gigi and Pops
March 17, 2010 Dear Family & Friends: Four years ago today, Lola Marie Happel was delivered on the wings of an angel. From the moment she was born we knew there was something special about her. Lola was born with a rare disease called Sturge-Weber Syndrome (SWS). SWS is a congenital neurological disorder of unknown …
15th Annual Charity Golf Tournament
Date: November 16, 2019
Where: Baytree Golf Links
Melbourne, FL
Time: 7:00am Registration
8:15am Shot Gun Tee Off
Cost: $95 if paid before October 31, 2019
$105 after that date
To register to play in our golf tournament this year, go to:
A Message from Mitch & Jeanette Ribak – Click the Letter to read
