Letter from Gigi and Pops
Happy Birthday Lola
Lola, there isn’t a day that goes by that you are not in my mind and in my heart. You are truly one awesome little girl. Your smile, your eyes, your love for everything just shows all the time!
It won’t be long that you will understand that what has happened to you is a gift. You will be the guiding light for so many children that have Sturge Weber Syndrome. Your ability to bring a smile to everyone will enhance your ability to bring SWS to the forefront.
For as long as I am alive Lola, I will be here to help you, guide you and love you. You are my brightest light. I love you.
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15th Annual Charity Golf Tournament
Date: November 16, 2019
Where: Baytree Golf LinksMelbourne, FL
Time: 7:00am Registration8:15am Shot Gun Tee Off
Cost: $95 if paid before October 31, 2019
$105 after that date
To register to play in our golf tournament this year, go to:
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