A chronicle of Lola’s challenges and triumphs

1 comment

    • admin on April 10, 2011 at 2:16 pm

    From Pops!

    Lola, there isn’t a day that goes by that you are not in my mind and in my heart. You are truly one awesome little girl. Your smile, your eyes, your love for everything just shows all the time!

    It won’t be long that you will understand that what has happened to you is a gift. You will be the guiding light for so many children that have Sturge Weber Syndrome. Your ability to bring a smile to everyone will enhance your ability to bring SWS to the forefront.

    For as long as I am alive Lola, I will be here to help you, guide you and love you. You are my brightest light. I love you.


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